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Local Charity | Briezy’s Bunch

Who better to tell you about what Briezy’s Bunch is than the organization themselves? We pulled this from their About Us page:

“We are a 501(c)(3) nonprofit public charitable organization.

We’ve been motivated by not only our own navigation of insurance denials but others’ experiences too. Feel free to peruse the site and meet our founding board (below) and learn more about what we do, who we serve, and how you can help!

Our daughter, Aubrie, the inspiration for creating this nonprofit, has been diagnosed with Dravet Syndrome, a rare and potentially catastrophic form of epilepsy. Read her story here.

The risk of premature death is higher than others without epilepsy. Sudden unexplained death in epilepsy (SUDEP) can happen to individuals with epilepsy but the risk is automatically increased in Dravet, because of the intractable nature of the disorder. Of those who die prematurely, 73% are under age 10, with causes of death related to SUDEP but also drowning, falling, and other accidents while seizing.

The risk is decreased with early diagnosis and aggressive treatment, however, insurance is reluctant to cover some aggressive treatments prescribed by physicians including medications, necessary medical equipment, seizure monitoring devices, and medical supplies.

Briezy’s Bunch aims to make an impact in the lives of those affected by epilepsy by providing financial and educational resources. We provide financial assistance to cover critical care needs when insurance denies coverage, educational materials and assistance to those navigating the epilepsy journey, and host a support group for individuals affected by epilepsy in our local community.”

In August of 2018, they will hold their first annual Golf Tournament.  If you’re interested in becoming a sponsor, download the PDF here.

Posted on September 18th, 2017 by Jaimee Moran

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